CrowdMed Review

My Experience Using CrowdMed

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Rating: ★★☆☆☆ (2 out 5 stars)

For 8 years I have been suffering from an undiagnosed health issue. After seeking help from over a dozen doctors and medical experts and not finding any diagnosis or relief I then decided to try Here is my experience and review so far.


  1. The mission statement seems very nice. Wanting to help patients find relief from medical problems that the standard medical field is not solving.
  2. The individuals that help the patient on CrowdMed are called detectives. They are made up of doctors, nurses and other medical professionals. However, there are other detectives that are not medical professionals. In fact, anyone can sign up to help solve cases. This can both be a pro and a con.


  1. The main con is the price. To take advantage of this service you need to pay a monthly fee. At the time of this writing it is $150.00 USD a month. It seems nice that the creators of CrowdMed want to help people. But these patients are already destitute and low on funds after attempting to get help from the standard medical system. So $150.00/month is an outrageous price for these patients that can barely work and have very little money coming in.
  2. When you sign up they state that it usually takes about 2 months to get a sufficient number of responses to probably find a diagnostic solution. However, this does not seem to be the case. I have been signed up for more than 4 months and still don't have a solution. If you search cases that are unsolved there are many patient's cases that have been going for more than a year.
  3. You set a reward that is given to the detectives with the best suggestions after you close your case. It seems that most medical professionals don't pay much attention to the cases with a low reward. As with the normal medical system it seems to work better for those that are rich.
  4. Most of the detectives seem to not listen to the patient just like talking to medical doctors in person. When you explain to them why you do not believe, based on your symptoms, that their suggested condition is what you have, they seem to ignore the information you present. Some of them only respond once or twice and then never follow up when you present more information.
  5. The layout of is very confusing. It is often difficult to navigate to your latest messages and discussion comments.

Full Review

My symptoms are as follows: I was having chronic bumps on my eyelids and chronic stinging of the eyes and styes and chalazions for many months. I continue to have styes routinely every month. I never had styes before 2011. Many ophthalmologists and eye doctors have not been able to diagnose my condition. They just say that it is blepharitis, which basically means swelling of the eyelid.

A few months after that I started having chronic diarrhea, stomach aches and weight loss. I continue to slowly lose weight. But I do not have a loss of appetite. Through elimination I discovered that I can no longer eat pork, beef, peanuts, artichoke and few other things without getting very sick to my stomach. But I do not have a problem with dairy or wheat. I also have to be careful with too much fiber. I never had these problems before 2011. Stool tests, blood tests, a colonoscopy, a CT scan, and and upper endoscopy have all shown negative results as to a diagnosis.

A few months later I started having chronic nasal congestion and runny nose. I now have a runny nose and nasal congestion every day of my life. After trying many different antihistamines and nasal decongestion medicines my symptoms are still strong. None of the medicines bring any relief.

A few months before my symptoms started at the end of 2010, I was bitten by a tick. But I removed it in about an hour and I did not have a red bull's eye rash. But a couple of weeks later I did have what seemed like a bad flu and fever for more than two weeks.

Timeline of symptoms

11/12/2010 - Tick bite on my stomach. I removed the tick within an hour of being bitten.

11/26/2010 to 12/10/2010 - Sick with flu/fever

12/20/2010 to 12/31/2010 - Sick with flu/fever

01/05/2011 - New water pressure tank at house

01/08/2011 - Noticed bumps on my upper eyelids. Vision also getting blurry.

01/13/2011 - Doctor prescribed Optivar for eye allergies. It did not help.

01/27/2011 - I Licked Banana slug to see if it made my mouth numb.

02/02/2011 - Ophthalmologist prescribed Tobramycin-Dexameth and recommended Ocusoft Lid Scrub. I have been using Ocusoft Lid Scrubs for 8 years now. I think it helps but my eyes still have blepharitis and develop styes regularly.

02/09/2011 - Ophthalmologist prescribed Erythromycin Ophth Ointment.

03/22/2011 - Ate ground beef that was stored in the refrigerator and had been cooked about 5 days before. Diarrhea started.

03/23/2011 - Purchased and ate half a box of Crunch 'n Munch from the grocery store.

03/23/2011 - Ate broiled pork chops from the oven. Diarrhea within an hour.

03/24/2011 - Ate medium flavored boneless chicken strips from Wing Stop in Freedom, CA. Within 30 minutes I had stomach cramps and had to run to the bathroom with diarrhea.

04/17/2011 - I noticed that my temples were waning. I weighed myself and I was 160 lbs. 20 pounds lighter than I was at the beginning of the year. I had diarrhea just about every day for the past month.

04/18/2011 - I went to Palo Alto Medical Urgent Care for help.

04/19/2011 - Blood test: Normal.

04/21/2011 - Stool test: Normal. No ova or parasites seen in examination of the concentrate.

06/06/2011 - Chronic styes and chalazions on both eyes, upper and lower eyelids. I had never had styes or chalazions before 2011.

11/29/2011 - Eye Exam - Doxycycline Hyclate 50MG. Did not help.

12/20/2011 - Eye Exam - Inject/treat eye w/ medication (kenalog). Some relief from eyelid swelling.

11/01/2012 - Quest Diagnostics eye culture result: gram negative bacilli

11/28/2012 - Disease specialist at Palo Alto Medical. Prescribed Doxycycline 100mg twice a day again. Did not help. Caused severe stomach upset.

11/28/2012 - Blood test: normal.

11/28/2012 - HIV test: Negative.

11/28/2012 - Immunoglobulin test: normal.

12/20/2012 - Opthalmologist prescribed: Pred Forte (steroid) eye drops. Found some relief from eyelid swelling.

02/11/2013 - Food Allergy Test. Egg white, egg yolk, cows milk, soybean: Negative for all.

02/11/2013 - Celiac Test: Normal.

02/13/2013 - Fecal Fat Test: Normal.

03/12/2013 - Eyelid surgery on both upper eyelids at Stanford Eye Center. Removed scarring from chalazions and put kenalog injections in the eyelids.

04/01/2013 - Colonoscopy: Normal, no evidence of Chrohn's, colitis, h. pylori, polyp or tumor.

04/15/2013 - LYMES ANTIBODY Test: Negative.

04/16/2013 - Stool test: Normal. No ova or parasites seen in examination of the concentrate.

04/16/2013 - Giardia test: Negative.

05/20/2013 - Upper Endoscopy: A diminutive hiatal hernia was seen on retroflexion. Gastritis. There is no evidence of H. Pylori bacterial infection. Take omeprazole or prilosec OTC 20mg daily for 6-8 weeks. - Did not help.

07/09/2018 - Singulair - MONTELUKAST SOD 10 MG TABLET. Did not help.

07/25/2018 - Flonase (Fluticasone Propionate Nasal Spray). Did not help.

10/10/2018 - Breath Test: Normal. No sign of h. pylori or milk intolerance.

10/18/2018 - Allergy test: Cottonwood and Olive trees are positive at a 9. Dust mites are positive at 13. All grasses and weeds and most other trees are at 7.

1/15/2019 - Blood Test: Normal.

2/26/2019 - HIV Test: Negative.

2/26/2019 - Hepatitis Panel A/B/C: Negative.

After submitting my case to CrowdMed I have had 20 Medical Detectives respond. Some of them have continued to follow up but some of them have gone silent after I respond to them.

I have had 10 suggested diagnosis's: Meat allergy, Sjogren's, Cystic fibrosis, Lyme disease, SIBO, Mast Cell Activation Syndrome, Oxalates, Taenia solium (parasites), Scleroderma, Reactive arthritis.

Out of these 10 suggestions only 2 of them have had more than one medical detective suggesting it. Three medical detectives suggested that it might be Lyme disease and three medical detectives suggested that it might be Cystic fibrosis.

I always thought that it might be Lyme disease because I have read that many times the tests come up negative and more thorough testing has to be done. I am also an avid hiker. But it is difficult to find a physician to pursue Lyme disease testing. My PCP (Primary Care Physician) did not want to pursue it. So I had to see an expensive specialist on my own without a referral. My Medi-Cal insurance does not cover it unless I am referred by my PCP to a very small list of doctors and practices. The detectives at CrowdMed have had no feasible suggestions on how to get properly tested without the huge expense.

So I am waiting for the results of tick-borne disease testing from IGeneX, Inc. for over $1500.00 USD. If it turns out that I have Lyme disease then I will raise my review of CrowdMed to 3 stars instead of 2. But it took many months to get more than 1 detective to suggest this diagnosis. I was eventually going to get an expensive Lyme test done anyway even if I did not sign up for CrowdMed. But I was hoping I would find a way to do it without the huge expense.

Last updated on July 25, 2019
Created on July 25, 2019

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User Comments

There are 4 comments.

Displaying first 50 comments.

1. Posted By: Bit - - December 7, 2019, 5:41 pm
Really hoping to see the final result on the accuracy of their suggestions.

2. Posted By: Jeff - - December 8, 2019, 5:21 pm
Hi Bit,

Thank you. Me too! I haven't posted an update because I have not had a diagnosis yet. My symptoms are still bad and getting worse. I have been going to Stanford and have had tests run in the gastroenterology department. In another clinic I have done tests ordered by a rheumatologist. But all the results are negative. The Lyme test that is approved by CDC and IDSA still says that I am negative for Lyme. I have also gone the unconventional route and have been seeing a naturopathic doctor. But the test results are inconclusive. I have had a Lyme test and other tick borne tests done from IGeneX which cost $1500. The results were indeterminate for Bartonella and supposedly positive for Lyme according to IGeneX standards. But they are not approved by CDC or IDSA. According to IGeneX testing positive is > or=80 and I had a result of 80. But western medicine doctors will not accept the result because the approved test says that I am negative for Lyme disease.


3. Posted By: NW - - October 26, 2020, 8:00 am
may as well treat for Lyme disease which is a few days antibiotic.if your history is so severe, ask primary care nicely they might give it

4. Posted By: Jeff - - October 26, 2020, 1:26 pm
Hi NW,

Thank you for the comment. I did go through some antibiotics for my blepharitis in the beginning of my problem 9 years ago. Antibiotics that are also used for Lyme disease like doxycycline. It just made my stomach upset and did not help with my blepharitis or my other symptoms such as weight loss, food sensitivities and lack of energy. 

I can't get any doctors to prescribe anything for Lyme without getting a positive test from CDC approved Lyme disease tests. I am always negative with the approved tests. I was Lyme positive with the iGeneX test but that is not approved. So I can only get homeopathic remedies from naturopathic doctors which I tried for over a year but it did not help with any symptoms.